Keep Calm and Don’t Panic!

Find out whether your local CCG currently undergoing a consultation process.

Respond to the consultation survey and raise any queries or concerns with any way the engagement is being handled, e.g. any ambiguity in terminology and impact statements.

If your CCG has completed its consultation and the governing body has made a decision to stop prescribing Specialist Infant Formula.

Contact the CCG and seek confirmation as to which formulas and whether you might be affected.

Read through the consultation engagement document and final reports carefully to see if it is clear what the proposal and decision are. Some CCG’s have specified exactly which formulas are involved, as did Cambridgeshire and Peterborough:

If your CCG’s Governing Body has decided that EHF or AAF milks fall within their decision.

Complain to the CCG formally regarding their decision and/or consultation. Once you have a final response, you can take this to the Parliamentary and Health Standards Ombudsman if you don’t agree with their decision.

Contact your Local MP as well as their main local political opposition.

Contact individual members of the CCG’s governing body to make sure they understood the detail of the proposal as recommended to them.

If your GP or dietician is not willing to prescribe an EHF or AAF formula because of directions from their CCG.

We don’t believe this should be happening to anyone. No decisions of this type are believed to have reached the implementation stage. Leading allergy charities, healthcare organisations & professionals and individuals are busy lobbying CCGs over their proposals and implementation plans.

If your GP or Dietician insist you now have to pay for the formula if you want to continue having it.

  • It is routine for repeat prescriptions to have a review date, so they may just be checking to ensure you are being prescribed the right milk and amount depending on your baby’s development and whether there has been any change in their allergy.
  • Search for the infant feeding/prescribing guidelines for your area, many of these are on the internet. We have links to some in our NHS CCGs page which is being regularly updated. If you can’t find them, contact the Medicines Management team at the CCG to get the prescribing guidelines. Check whether the formula you need is listed on the guidelines and the quantities that should normally be prescribed.
  • Ask your GP/Dietician why they are not willing to prescribe according to the guidelines. If still unsatisfied contact the Medicines Management team to see if they can contact the GP/Dietician and investigate, you can also complain to the GP Practice Manager if you believe they are not following the area guidelines properly.